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Rendez-vous with . . . Debi
Laryngectomy
patient and tobacco control advocate.
California, USA
By
Philippe Boucher
This interview would not have been possible without the help of Matthew
Le Veque.
RENDEZ-VOUS 81
November 16, 2000
Debi had a laryngectomy due to her smoking. She gave her testimony in a
1997 TV ad for the California's Department of Health campaign. This ad,
where she smokes through her stoma is considered one of the most effective
to get the public and especially the teen's attention. It has also been
aired in the states of Oklahoma, Oregon, Washington, Indiana and in
Canada. Two new TV ads with Debi are part of new media campaign that
started November 2d in California.
Q1. First, I want to thank you Debi for having the courage to share
your experience of the addictiveness of tobacco and the consequences of
your smoking. You have certainly touched millions of people in
California and
beyond in other states and countries where your testimony has been aired.
Thank you.
How did that happen? How did you decide to go on TV?
Debi : Sharri Robertson, one of the main contacts for the New Voice Club
in the San Fernando Valley, contacted me. [Sharri has recently passed away
from brain cancer.] She was working with the Laryngectomy Association of
California, and told me that the California Department of Health Services
was planning a commercial spot. They were looking for someone who had been
disfigured from tobacco use, and particularly wanted a laryngectomee who
still smoked. I was still smoking at the time, but I had never publicly
admitted it. I remember speaking at a school program once and I had denied
that I was still smoking.
Imagine, standing up in front of everyone after this horrible surgery and
saying that I was still smoking cigarettes? It was embarrassing. It took
me a while to decide I would do the commercial.
But I decided to do it. They showed me the storyboard and the script. I
didn't make any changes, except the age when I started smoking. The
original script said that I started at 14-15, while I actually started at
13. We changed the age they had scripted.
The shoot took place in a house in Pasadena. The members of the crew were
smoking, which was completely different from the atmosphere on set the
second time around, after I had quit. [That time, it was a non-smoking
set.] We were all talking about our addiction to nicotine, and the things
that we had done to try to quit.
The shoot was the same day as "Baby Blocks," another commercial for the
California Department of Health Services. My commercial was shot second. I
was extremely nervous. When they put me in the chair to say my lines, I
was terrified. You dream about being an actor, but you never imagine
having that kind of stage fright. I was a deer in headlights. The shoot
took about four hours to complete - not just because of me, but because
they were trying different angles and lighting.
The smoking part was the most difficult. At that time, I had never smoked
in front of anyone else. I would go downstairs in my apartment in the
garden, where no one could see me. I had never looked in the mirror, and
was not at all aware of what I looked like. When I smoked in front of
people for the first time on set, it was very strange. And it was the
first time that it really dawned on me, how much of a prisoner I was. My
addiction was more important than anything. It was hard to do that in
front of so many people. But when I finished that day, I felt good about
it. If one person stopped smoking because of what I did, it was worth it.
They were not sure the commercial was ever going to air. Up until that
point, nothing had been shown on TV like this. It was so blatantly
graphic. But it did air in March 1997. And I really wasn't prepared for
the reaction.
On the first day, they talked about it on the morning news. I didn't think
much about it, but later another news program talked about it. Then I
thought this must be a big story. Then it really hit me. Later that day, I
had to go get my drivers license renewed at the DMV. While I was standing
in line, a guy pointed and said, "That's the woman in the commercial."
That's first time I was recognized.
I have also gotten a lot of positive comments from people who recognize
me. I once had a gentleman come up to me and say that I had given him his
wife and daughter back, because they had quit smoking. Another woman
stopped me in a restaurant and gave me her pack of cigarettes, saying that
she was quitting.
Q2. In a recent interview with Jim Martin, a laryngectomy patient from
North Carolina, ( see
rendez-vous 75 ) he mentioned how desperate and powerless he felt after
the surgery, how often patients feel ashamed to speak out, to show their
stoma. Did you have a similar experience?
Debi : I'm sure we all do. There are the ten days after the surgery of
total helplessness. And in my case, I didn't learn to talk for two years.
There is a lot of helplessness, and anxiety. The first time someone said
that I deserved this, because I was a smoker, I was angry.
I stayed angry, but I didn't stay quiet about it. That's why I became an
advocate for patient's rights and laryngectomy rights.
Q3. In the first TV spot you put your cigarette into your stoma. How
did you feel continuing to smoke after the surgery? Did you ever consider
suing?
Debi : I was in the hospital for ten days after the surgery. Then for
another month there were a lot of people around, so I couldn't smoke. But
then that day came, when I had my first cigarette again.
It was almost overwhelming. You have to understand, the smoke went
straight to my lungs, without all of the filters in between. The effect
was almost like my first cigarette - I was dizzy and lightheaded. That
feeling should have been enough to let me know not to do it anymore. But
the cravings were just too strong. You have no control when you are
addicted to cigarettes. I am a control freak, and it is very humbling to
realize that you have no control.
Of course I am mad at the tobacco companies. But I can do more damage to
the tobacco companies by talking to students and doing commercials, than
wasting ten years of my life in courtrooms fighting lawyers. I would
rather be in the classroom teaching the other side of the issue.
Q4. In one of the new TV ads, that I have not yet seen , you discuss
your decision to quit. Can you tell us about it?
Debi : I quit because of my niece Joy, who is now seven years old. When
Joy's mother moved in to help take care of me, it was a rough year. I was
in the hospital 13 times in 12 months. The first time Joy asked me what
the funny smell was in the house, she was five years old. It was cigarette
smoke, but I lied to her. After we put her to bed, I just sat there
thinking about what I did. There was no way I could go on lying. Kids are
smart.
Joy always saw me as the person I was after the surgery. She learned from
me. We had to teach her to cover her mouth when she coughed, not her
throat! I realized that I was an example to her, and I didn't want her to
turn out like me.
Quitting was hard. I got a bag of butterscotch candy, because I thought
that the sweet and saltiness of the butterscotch would satisfy my oral
cravings. But what people don't realize is that smoking is not just an
oral fixation - it's a whole process. It's opening the pack of cigarettes
it's a ritual.
And the hardest thing is figuring out is what to do with your hands! I saw
a guy in a movie once playing with a ping-pong ball with a pair of
chopsticks, trying to catch the ball. So that's what I did. Every time I
would reach for a cigarette, I would instead pick up a pair of chopsticks,
bounce the ping-pong ball, and try to catch it. I killed the oral
sensation with the candy, and kept my hands moving with the chopsticks.
Now that I have quit, my niece thinks it's just great. She is pretty
surprised. She is so young, she never imagined she could have such an
impact. She also thinks that it's exciting, that people know her name.
They walk up and say, "You must be Joy!" And she is happy because she
thinks I am going to be around longer.
Q5. Many kids downplay the addictiveness of cigarettes. They think
they'll be able to quit later on, when they'll feel like it. Was that your
case? What do you think should be done to adequately warn the public? Air
more ads like yours?
Debi : I never thought about quitting when I was younger. It was one of
those things I just accepted. Back then, there weren't a lot of people
telling you that it was not good for you. People would tell you not to
smoke, but they didn't give many good reasons. Plus, if your parents
smoked, it was hard to listen to them because they were doing it too. At
that time, nobody knew how to say, "I'm an addict. I want to quit."
I am always in favor of more ads. If a three-year old can recognize
McDonalds from TV ads, they are paying attention. The more anti-smoking
ads fill the airwaves, the more information people will have. This is what
is important.
When I go to schools to talk to kids, I tell them there is a difference
between making a decision and making a choice. If you have the
information, you are making a decision. If you don't, you are making a
choice.
Q6. Have you seen the new big warnings with pictures that are going to
appear next year on Canadian packs? The first one on the list is
cigarettes are highly addictive. Do you think such warnings would have an
impact? Should the US
packs become like that?
Debi : I think it will work for a number of people. I don't think it will
be a cure-all. I'm sure that a lot of people are not going to want to put
something in their mouth that says "Danger: this will kill you." I do
think that the warnings in the U.S. are not strong enough. Unfortunately,
the "in-your-face" stuff works.
Q7. Is there anything else you would like to add ?
Debi : I am glad that people are starting to listen about the dangers of
smoking. I feel very fortunate to be a part of this. My feeling is, if I
can't be a good influence, at least I can be a horrible example.
Thank you.
PB: Thank you Debi for taking the time to be with
us today.
P.S : Debi's first
TV ad for the California DOH is titled "Voicebox: Industry". It can be
obtained via the CDC Media Campaign Resource Center (MCRC). The person to
contact is Karen Leggett : leggett@mindspring.com
Rendez-vous is supported by a contract from the Robert Wood Johnson
Foundation
This document's URL is:
http://www.tobacco.org/News/rendezvous/debi.html
Return To:
Philippe Boucher's Rendez-Vous Page
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